If you had been suffering from symptoms for a long time, you were probably relieved when you get a diagnosis. It’s an “A-ha” moment. Your problem finally has a name. And if you, like most of us, doubted at times that you were really sick, now you have validation. And for all those who doubted you, you have vindication.
The time of wondering and self-doubt is over and you are ready to get to work and fix this thing-not so fast. First of all, there is no cure. The treatment plan is aimed at slowing or preventing permanent damage and easing the symptoms, not eliminating the disease. Then you find out that there is no simple formula for your treatment. One person improves on this medication and another gets worse. The flush of relief at the diagnosis quickly turns into uncertainty and frustration.
This is the time to resolve to establish a good relationship with your medical providers. Keep a journal of your symptoms to help your doctor evaluate the effectiveness of treatment. Learn to be specific when you talk to the doctors, and expect the doctor to answer your three most important questions at each visit.
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